Yesterday was our clinic day and everything went smoothly. Abbey woke up happy and was in a pretty good mood the whole day. She isn't much of a morning person so clinic days can start off rough when we have to wake her really early. I have to put emla cream on her port two hours before we get to the clinic so when we have early appointments (sometimes we have to be there as early as 8a.m.) then I am waking her two hours before that. Emla cream is a cream (we call it 'magic cream') that numbs the skin over her port so when they access her, it doesn't hurt her. Her port is in her chest and she has gotten very used to them accessing it. She holds her shirt up when they put the needle in and take it out and even helps with flushing her tubes with saline. A lot is done through her port. They always draw her blood through it to check her numbers and administer much of her chemo through it. It is a very scary thing at first, but we have all gotten used to it. I usually read her a book while her nurse is putting the needle in and have gotten very good at distracting her. Since her port is completely under her skin, when she doesn't have a needle in she is able to get baths and do everything like normal so it doesn't interfere with everyday life.
So back to yesterday, we didn't have to be there until 10:30 so it was an easy morning and we were able to take our time getting out the door. Her numbers looked great so she got her 2 chemos like planned. We ate snacks, read lots of books and watched Dora to make the time go by. They increased her methotrexate (so we are currently giving her anti-nausea medicine every 6 hours to try to prevent nausea and vomiting) and also gave her the vincristine. We will be watching her mouth for sores and hopefully are on top of her stomach getting sick, but so far she has been feeling pretty good and acting normal. If we can get through these next couple days with no fever, upset stomach or sores, we will be very relieved and thankful! We'll keep you posted on our little patient :)
7 comments:
I'm so glad she is feeling well and not having too many harsh side effects. I have just recently found your blog and read through the whole thing. you have such a strong little girl. Tell Abbey Caldwell Idaho is praying for her, along with our church.
Great news! Thank God! I'll be saying prayers for my sweet heart to stay comfortable and healthy! Methotrexate will be no match for my gf!
Love, JGI
Glad she seems to be coping well at the moment. Thinking of you all. Blessings.
Thinking of you and praying for the little love.She will lead and you will follow.He will lead and you all will follow.I hate those ports.Zoey's is underneath her left clavicle.It;s changed out every Monday while inpatient.We skip the Emla because we found just the start of that with the tagaderm set her off.So ... we just go for it.Never good either way is it?Praying for uneventful week for you all,especially Abbey.
Oh forgot ...I might be wrong,I am so hazy lately but I think you asked about posting Zoey's button.Feel free.I too am going to start a section with these little ones fighting cancer.Hate that I have to do it in the first place but the more prayers the better.Can I put Abbey's button on?
Glad to hear everything went well. I'm hoping to call tomorrow, we'll see how the Sabbath goes. : ) Love to all of you!
alicia for the 7
Glad everything went well...keeping Abbey in my prayers daily...
Hugs
Terri
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