I didn't mention this in my last post, but yesterday was actually the very first day that I haven't gone to clinic with Abbey. Jacob had a special day called Grandparents Day at his school where families could come and see them in action in their classroom and then he was able to show us around his class. There then was a presentation where all the students did something special, from reciting Bible verses, saying poems and singing songs. So, of course when we saw the date of this special day at his school we were both very torn as Abbey's MRI has been on the calendar for over a month now and if we were to change it we knew it would be for a later date (which we weren't about to do). So we talked to Jacob and Abbey and explained to them that we would each take one of them for the day. I sometimes feel like Jacob gets the least of me, so really wanted to spend that day with him and Jim feels like he gets the least one on one time with Abbey so we thought that this was a good plan. They agreed that it was good so that made it easy.
It was hard not being there all day to know exactly what's going on with her every second. Jim was really good about texting me all day with updates and pictures of Abbey though so that helped. Abbey was put under sedation for over an hour (that always makes me nervous), but Jim said she did great and woke up in good spirits. Her ANC continues to be very low (it was 70 yesterday) so her body still has not recovered from her last virus. Her WBC count is going up though and platelets were up some also so they are coming up, just slowly. Another thing that they look at is her monocytes. These turn into nuetraphil (ANC) and that number was very high so we know they are coming. She got a chemo through her port and started her 5 days of steroids last night. She also got her flu shot while in sedation which was nice that she didn't even know.
So back to her MRI results.... The doctor told Jim that he would definitely call us last night and that we should know the final results by then. Doctor B whom we think the world of gave us his cell phone number very early on and told us to feel free to call him with questions and concerns. We haven't used it too often, but at 9 last night when we still hadn't heard anything Jim decided to call and just see if he knew anything. The doctor said he was just about to call us.
Jim went in the kitchen to talk and I was in the living room with the kids. It was pretty loud as they were all playing so I couldn't hear the conversation. My heart was beating out of my chest. It seemed like Jim was in there for an hour and I almost didn't want him to come back because at that point I still had the hope that we were done and didn't want that to be crushed with bad news.
Jim came in with a huge smile on his face and just said "It's gone. We're done." I think I smiled for an hour and just couldn't believe it. We told Abbey and Jacob right away. Abbey just smiled and dug her head into her blanket. Jacob was more verbal and kept saying it was great! We are so thankful to be done with this very hard part of her treatment.
I never, ever thought I would be able to give my own child two shots a day for over six months. It is hard to believe that we did it! This morning I spent some time cleaning out our one cabinet that is just for all of Abbey's medications. It felt so very good to get to throw away all the needles, alcohol pads and syringes filled with lovenox. I can't wait to see her little arms and legs heal over these next couple weeks and know that I won't be causing anymore new bruises or bumps.
Thank you so very much for praying! This is a huge answer to prayer and we are so thankful to be done with this part of our journey! No more shots and no more blood clot!!! Yay!!!