Sunday, February 22, 2009

Interim Maintenance Complete!!!

We are done with Interim Maintenance!!!  Thursday was the last treatment for this phase and it feels incredibly good to be able to check another phase off.  And even better than that, Abbey is feeling great!  She has breezed through this phase and the doctors said they were very happy with the little side effects that she had this phase. They also were pleasantly surprised by how high her numbers were Thursday.  They said that by this point, kids numbers usually bottom out, but her ANC was right around 1900, which is great :)!!  

We have a two week break from chemo (I thought it was 16 days, but it's 14) and then we begin Delayed Intensification.  We have to go back this Thursday to check her numbers and make sure she is handling the chemos from Thursday o.k. and also for an echocardiogram (it's an ultrasound of her heart).  It is standard procedure at this point because one of the chemos that she's on during Delayed Intensification has been known in the past (like 15-20 years ago) when given in high doses to weaken the heart. Our nurse explained that she will be getting a much smaller dose of that then they used to give a long time ago and that it is rare to effect her heart, but they watch it to be on the safe side. 

Our doctor and nurse also sat down with us to go over what to expect for the next phase.   After this break, we have a rough two months ahead.  She will be on steroids for the first week of the phase, then will be off a week and then on one more week.  We have such horrible memories of the last time she was on them so we are nervous for those few weeks.  They build up in her body so by the end of the second week she is on them she will really be feeling the effects of them.  There are also weeks during this phase where she will be getting chemo 4 days in a row.  She will be on oral chemos daily and we will be at the clinic a good amount.  They also told us that hospital admissions are more common in this phase because her numbers will be pretty low due to all the chemo.  If she would get a fever and her neutraphils  are below 750, they would need to admit her.  We have never been admitted back to the hospital since she was diagnosed, but the nurse wanted to prepare us that it isn't uncommon.  The doctor explained to us that this is their last chance before maintenance to hit her bone marrow hard to make sure no leukemia cells are hanging around.

Please hang in there with us these next two months.  We have been so encouraged by many of you who are checking in to see how Abbey is doing and we need you guys right now.  After long exhausting days we always love reading comments and e-mails from you guys and we know we have many of those days ahead.  Please continue to pray for Abbey's full healing and for her body to handle this next phase better than expected.  In about 2 1/2 months, life will start to get back to a little bit of normal for us, but it will get worse before it gets better.  We continue to keep our eyes up and focus on the One who loves Abbey even more than we do.  We have seen His hand in this since day one and know He will continue to carry us to the end.   

9 comments:

Terri said...

So glad to hear the good news that Abbey is feeling so good and all...

These next two months with be tough ones as you said, but know you have your friends at blogger walking beside you throughout this journey in prayer...

Hugs
Terri

Kristine said...

Abbey is such a little fighter! It's nice to hear that she'll have a break before starting the "hard" part. I have no doubt that it will be tough, but I also have no doubt that she will come out the other end healthy and happy. :)

Kristine said...

Keep us posted!

Shawna form Round Rock, Texas said...

I just recently came across your blog. I am sorry to hear the struggles your family faces, but do pray for you and your precious little girl. May God work a miracle on your beautiful little girl!

Meredith said...

My husband and I are praying for you all continually, and we will continue to do so over the next few months. God bless you and your beautiful family!

Anonymous said...

I found your blog from a friends blog. My family and I pray for Abbey and the rest of your family daily! I have a 4 year old daughter that is always asking how Abbey is and makes sure she prays for her every night! She also sits by me when I read your blog and loves to look at the pictures!

Anonymous said...

Praising God that Abbey is doing so well and her numbers are really good. Praying that Abbey and your family are able to take advantage of this two-week break and just enjoy each other making happy memories! Praying that Abbey remains strong and able to tolerate the next intense treatment phase. She is such a sweet, beautiful little girl. Look forward to Spring and "sunnier" days!

Gail
Annapolis, MD

Aggie said...

We will be praying for Abbey as you prepare for this next phase, and continue to pray for her during that time as well.

Thank you for your prayers (and sweet comments) for our family during this time, as well.

Beth said...

So glad that Abbey is feeling good and that you can check off this phase!!

We will continue to pray for Abbey and your family!! I will also be asking our church congregation to pray as well.

Isn't it AMAZING to know or even think that God loves our children SO much more then we even do!! We know how full our hearts are for our little ones...can you even imagine the love He has for them!!!! I truly believe that He is right there with your sweet Abbey, holding her and loving her all the while!!

Sending prayers!!